Actors Home party (photo by E. Herd)
Pseudonyms are used for Actors Home staff.
I took last Friday off from work to go to a holiday party at the Actors Home where my mother resides. I had other things to do, like renew my driver’s license, return a pair of slippers at Kohl’s. and pick up a final Christmas gift, but the main reason I took the day off was to go to the party.
My husband Lorin and I arrived a little before 4:00 to escort Mom from her unit to the party on the main floor.
“Mom, there’s a party on the first floor. Wanna go?”
“Not really. I don’t feel so good,” she said.
That should have clued me in, but I was persistent. Let’s be honest, I wanted to go to the party. I was looking forward to a couple glasses of wine, a hot meal and the entertainment. The mood was festive: red and white tablecloths, decorations, a pianist playing Christmas carols. What could go wrong?
When we entered the party room, Mom said, “I’m not dressed for this.”
“Do you want to change upstairs?” I said.
“No.”
The activities coordinator, Mira, said, “I’m dressed casually; I’ve been working all day.”
I said, “I’m casual too, Mom.” I was wearing jeans, and my striped Christmas sweater and black hiking boots.
She said in an acid voice, “Well, you’re always casual. At least you’re comfortable.”
No use arguing with the boss. Guess I’m a bum.
Servers came around with platters of hors d’oeuvres like shrimp and spring rolls.
“Mom, you like shrimp. You want some?”
“No, I’m not hungry.”
“Well, we’ll get you some anyway.”
The server handed her a small plate of shrimp with a spoonful of cocktail sauce and a wedge of lemon.
“Do you want lemon on the shrimp?” I asked.
“No.” I handed her a shrimp dipped in cocktail sauce, and she ate it reluctantly.
Lorin sipped a glass of coke, I had white wine and Mom had a Sprite.
Lorin said, “Mom is in a brown study.”
I had to ask him what that meant.
“Do you want a glass of white wine?” I asked her.
“No, this is fine.”
She used to like Chardonnay.
The pianist continued playing Christmas carols, and I sang along, hoping Mom would pipe in.
“This isn’t Christmas anymore. I miss Rick. There’s no family, not the way it used to be,” she said.
Rick is my brother who lives in upstate New York.
“I know, Mom. Do you want me to call Rick? We can speak to him now.”
“No, that’s okay.”
“These clothes don’t fit. Why don’t you give me clothes that fit?” She tugged at the rolled up sleeves of her pink sweater.
“I didn’t buy you that sweater, Mom. They got it for you at the old place.”
I sang along to “Have Yourself a Merry Little Christmas,” and said, “You always liked this one.”
“Yes.”
“It’s from Easter Parade*,” I said.
“I’m not dressed for a party,” she said, scrunching up her face.
Lorin and I made an executive decision to return her to her room, sensing that her discontent was escalating. When a social worker asked why we were leaving, I said that Mom was “cranky,” and we thought it best to bring her back to her room.
“Come back and enjoy the party,” she said, smiling.
I told Russ, the nurse in her unit, that she wasn’t having a good time and asked if she could have dinner with the group.
“Sure,” he said.
I wheeled her to a table with two other ladies and said, “I’m putting your cookies and soap in your room.”
“Okay, at least that’s something to look forward to,” she said.
Lorin stayed with her while I was out of the room.
When I returned, I said, “Okay, so you’ll eat dinner here.”
“I’m not hungry,” she said, petulantly.
“You need to eat something.”
Her face contorted into a sneer and she said to Lorin, “You shit!”
I exchanged looks with Lorin.
“Okay, Mom, we’re going now,” I said.
“You’re not staying with me for dinner?”
“No.”
Lorin said, “Have a good dinner. Good night, Katherine.”
“Enjoy!” she burst out, almost hissing at him.
One of the ladies at her table looked at Lorin and said, “She’s a liar.”
From the mouths of babes, or old people with Alzheimer’s—kind of the same thing.
Lorin and I returned to the party and enjoyed the buffet dinner and entertainment.
Broadway dancers and singers performed, including Christine Ebersole, who closed with “Have Yourself a Merry Little Christmas.”
I wish Mom could have enjoyed the party with us, but it was not in the stars, I suppose. Somehow it’s easier for me to tolerate her abuse of me—she could be very cutting and hurtful towards me before her Alzheimer’s diagnosis and still is from time to time. What I cannot tolerate, however, is her abuse of Lorin. That is unacceptable.
Perhaps I’ve become inured to her verbal and psychological cruelty, but something snapped on Friday. I felt like Little Edie in Grey Gardens, the ever-present caretaker who spent her life living with and taking care of her mother. No, I don’t live with Mom, but sometimes it feels like she lives inside my head.
I spent Saturday being angry at her for her cruelty, and at myself for spending so many years taking care of her when she has expressed so little love for me. I don’t think she’s ever really loved me. I’m not saying this for sympathy, but because I believe it to be true. There are many wasted years I’ll never get back. Liking myself and loosening her grip on me takes daily work; it may be a life-long effort. I don’t want to live in Grey Gardens.
*The song is actually from Meet Me in St. Louis, not Easter Parade.
Thank you for sharing a holiday story that is very real for so many people suffering on both side of the fence of illness. Alzheimer’s robs people of their memories, their minds, their lives; but does similar tragic things to the care givers as well. In this case you and Lorin were the target of your mom’s rage. I’m sorry you and Lorin continue to be her punching bag; and I’m also sorry your mom does not have the capacity to share in the joys of the season….but you were there, and tried, and keep trying, and that is what love is about. This is a very real Christmas story, thank you for writing so many truths.
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Thank you for reading, Nancy. I get tired of being a punching bag. xo
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My grandmother was born in England. When Alzheimer’s took over her life, it gave her back her accent. She became a catty English school girl. Once when my mom and I went to visit her, she greeted me by name but asked who my mom was. My mom said, “I’m Sis (her nickname)” Grandma then scrunched up her nose and said with all her mean-school-girl sass, “I never like HER.”
They had good days together too.
We are now going through the same thing with my mother. If I don’t visit her regularly, she “forgets” my name and I have to tell her who I am married to. She likes my wife a lot.
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I’m really sorry to hear about your grandmother and your mom. That’s tough. We simply have to live in the moment with them and go with the flow. It’s great that she likes your wife.
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You won’t Erica. But if you do, Grey Gardens will be lucky to have you. This broke my heart.
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Thanks, Matt.
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My mother has vascular dementia and is in a home and I only see her once a year because I live so far away, and am grateful for that. She hated me, and made sure I knew it, but when her dementia began to show it was like she forgot that she didn’t like me. However, even though I have come to terms with it I still am unable to forgive her abuse for destroying my childhood and damaging my brain.
When I heard her shouting out nasty things in the home, someone said ‘its just the dementia’, but I think that there is an element of personality that remains in a person too it is just that they have no inhibitions to stop it.
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You totally get what I was saying here. That’s how I felt too. Thank you for your insight.
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